Our Pride and Joy

Our Pride and Joy

Wednesday, November 20, 2013

Strength & Love

Hello everyone and welcome back to our blog, the blog I have time once every few months to update! :) We have had a busy last couple of months but we found out some news that I would like to share just so not only me and my family, but everyone else can join us on some much needed prayers for our sweet Watson. Craniosynostosis comes with other things that are not only involving surgery. When we orginally found out all this information on the Craniosynostosis (fusion of the skull) with Watson we were also told that when more then one Suture is fused that it could possibly be something involving a syndrome. Watson's front two sutures are fused which is a rare form of Craniosynostosis, because most of the time there is only one suture fused. Of course my first thought with my 2 week old is not only am I in shock my baby has to undergo a major skull and reconstruction of the skull Surgery but I know he is completely healthy and will be fixed right up after his surgery. We were told we could wait until his Surgery to undergo Genetic testing but the last few months we just decided to do it to get it out of the way, in case we needed to recognize something other then the Surgery. When the Geneticist had looked at Watson at 2 weeks old she said not to worry,  the one thing we need to deal with is his Cranio problems at this point. While meeting with the Cranio Facial Surgeon and Neuro Surgeon they of course educated us with what was wrong and how it can be fixed, and also how when more then one suture is closed it could possibly be a syndrome, but they let us know by looking at Watson there guess was it was less then a 20% chance of being a syndrome. Well as of a few weeks ago we did get the Genetic testing back and Watson has what is called Muenke Syndrome. I immediately started researching everything on this and found it hard to believe there wasn't a lot I could find. After lots of searching and speaking with the Geneticist we found that this was not discovered until 1996. Apparently when Craniosynostosis occured in children years ago they didn't ever get the gentics testing done, unless it was clear to the doctor there was something else wrong.  But what I have found is that there are very few things with this that could affect Watson. This occurs in 1 and 30,000 births, there is a 20% chance it could cause hearing lose, only 20% of children with this have mild delays, and the bones could have abnormal growths, which is why the bones fused and could cause them to fuse again once surgery is done. I never thought about anything like this happening to us when we decided to have children but now that it has I have learned so much on letting things be and knowing everything happens for a reason. This has made my relationship with god and my husband and children that much stronger and I know my sweet boy with be just fine, and no matter what struggles life brings you there is always hope. Watson will never be treated any differently then Weldon is, but deep down I know God made him special for a reason. Watson is right on track with all his milestones including sitting up, eating solids, reaching for his puffs to eat, and getting on all fours and rocking back and forth. Yes I think within a month or so we will have a crawler. At Watson's 6 month check up his hearing looked great and he was 19 pounds and 28" tall. He is in the 87% percentile and still growing like a weed! We are so blessed with our beautiful family and so very blessed to have the wonderful people in our lives that help us get through these tough times. Please keep us in your prayers with the months leading up to Watson's Surgery. Here are some pictures from the last few months..............
                        Our little Tiger :)
                                                                                                      Cool dude
                         Weldon LOVES his baby brother!

Saturday, August 24, 2013

Time flies when your having fun!

The last month has gone by so fast. We have had some great family vacation's this summer! Weldon is getting so big and now repeating anything that comes out of our mouths. :) He is learning to count and sing his ABC's. He is also peeing in the potty (when he wants too). His favorite word of all is NO, no momma, no daddy, or whoever is correcting him at the time :) Parenting is such a tough thing when everything that he says bad or good is so cute. HAHA. But all in all he is a good boy and we are definitely learning what the 2's are all about! As for Watson he is cutting teeth, rolling over, and even tries to sit up! He is such a little rolly polly he is already wearing 6-9 months! He absolutely HATES tummy time and LOVES to look in the mirror. Here are some pics of our little guys from the last month!

We also took a few Beach trips this Summer and the boys LOVE the Beach! Weldon could play in the sand forever! Watson is still a little small for the beach but he loves the water too! Braydon and Brinkley came too and Weldon loved them being there to play with! Jimmy and I were able to have a few date nights that we really enjoyed, while Mimi and Papa T keep the boys. The one thing I really wanted was to get a good picture of the boys on the beach. I have realized with their ages I will probably not be able to get good pictures until they are older but I had really hoped I might could get a good one! Unfortunately I have to take what I get, and this is the best one I got..............
                    Hilarious I know.........

I actually did get a couple cute ones though of the kids together. We made lots of great memories that we will cherish forever! Can't wait to go back next year!

                              Sweet cousins!

Bath time is a very fun time around our house! Both of the boys LOVE the water and bath time so much! Sometimes thats all I can do to calm Watson down. They are such water babies! Weldon can already kind of swim without his floaties! And Weldon loves Bubble Baths!

Since last month we have had a few check ups at Children's for Watson and as far as we know he is doing great! He will go in for his MRI in a week or so, and after that they shouldn't need to see him for anything until more about the Surgery details which will happen early March. Of course as always please keep Baby Watson in your prayers. In our eyes he is just like any other baby we know! God has a special plan for us and Watson and we will take everything day by day. We appreciate the love and support from all of our close family and friends. Here are a few pictures of the little Rolly Polly :)
                          Big Boy in his Bumbo!

Tuesday, July 30, 2013

You never know how strong you are, until being strong is the only choice you have.

I sit here tonight thinking about how lucky I am. Sometimes its hard to remember all the blessings in life when you are going through things you never thought you would have to go through. I have really been strong the last couple of months on dealing with everything that is changing and happening in me and Jimmy's lives. I try to keep my head up. But sometimes it's so hard, some days I really struggle, today being one of them. When I look at Watson I see nothing but pure joy and cuteness in his sweet little smile. But then there are times I can't stop thinking about one thing, and that is that in 6 short months I will be faced with the hardest thing I've ever had to deal with. Its very hard facing that something is wrong with your little baby who is so defensive less and innocent and has no idea the road he is about to go down. Here I am trying my hardest to take in the first 9 months of his life not thinking about whats to come when really that's all that goes through my head. I think my biggest struggle is treating him and Weldon both the same because I look at Weldon and know he is this perfectly healthy little boy. And Watson has to undergo things I would have never dreamed of. But deep down they are both so perfect in my eyes. They are both these beautiful things me and Jimmy created and I am trying everyday to not let this effect the way I treat Watson. I want him to know he is perfectly normal and sometimes god has a way of picking you out to be extra special.  I may have issues with the way things happen and I may have trouble understanding why all this is happening to us. But deep down me and Jimmy both know God has a plan for us and a plan for Watson. I know everything will be ok. I just have a hard time remembering that some day's. Watson will be having an MRI in a few weeks for some irregular breathing problems and will also have a sleep study done for sleep apnea. Please keep us in your prayers. We need lots of them. Here are a few pictures from the last couple of weeks of my sweet babies :)

                                                                 Little Jimmy in this pic :)
                                                          My little Thinker :)

                                                                Watson's growing like a weed :)

Sunday, May 26, 2013

Love for Watson

Watson Lynn was born on May 6th at 6:09 A.M. He was 8 lbs 3 oz and 21.5 inches long. The last few weeks have been mixed with lots of emotions. Emotions that we never thought as parents that we would ever be faced with. When Watson was born we had kind of noticed that his head was shaped a little different but didn't pay to much attention to it thinking in the following days it would shape up. We spoke to a few different pediatricians the next few days who didn't seem to know much of what this could be but had told us his head was not formed properly. With lots of tears the first week we did our best to keep our heads up and we got into Children's with a referral to the Cranial and Neuro Department. Watson was diagnosed with Craniosynostosis. This is when the skull bones fuse to early. He has a mild and uncommon form of Craniosynotosis and will have to have surgery to correct it, where they will go in and unfuse the skull bone so that the brain has room to grow. I still feel like I am dreaming and I keep telling jimmy I wish he would wake me up. But in the last few weeks we have learned that we take to much for granted and that we are extremely blessed. We have two wonderful little boys. We will now continue to pray that Surgery and everything that comes with this will all go like it is supposed to and Watson will be a perfectly healthy little boy just like his brother. We have a long road a head so please keep us in your prayers.

Angel :)
Can't believe he can wear 3 months!
Sweet boy :)

Weldon calls Watson his baby :)